Project: CO-desiGning demeNtia dIagnoSis ANd post-diagnostic CarE

Acronym COGNISANCE (Reference Number: HESOCARE-329-098)
Duration 01/01/2019 - 31/12/2022
Project Topic Despite many national guidelines for diagnosis and management of dementia, persons diagnosed with dementia and their family carer partners are often dissatisfied with the diagnostic process, and receive limited post-diagnostic support. Our aims are to co-design and deliver in partnership with people with dementia, family care partners and health care professionals, toolkits and campaigns to improve the dementia diagnostic process and post-diagnostic support in Australia, Canada, the Netherlands, the UK and Poland; and to evaluate the campaigns. Work packages will: (1) explore through surveys and focus groups current experiences, barriers and facilitators to dementia diagnosis and post-diagnosis support from the perspectives of persons with dementia, care partners and health care professionals; (2) develop internationallyapplicable toolkits supporting guideline implementation for the at-risk public and health care professionals; (3) devise and deliver campaigns to produce behavioural change using the aforementioned toolkits in selected regions; (4) evaluate the campaigns using the RE-AIM framework including measuring impact on the diagnosis, post-diagnosis experiences, and practitioner attitudes and behavior; (5) develop an implementation playbook outlining how to deliver similar campaigns in other countries CO-desiGning demeNtia dIagnoSis ANd post-diagnostic CarE (COGNISANCE) will provide a new internationally adaptable set of recommendations, toolkits for persons with dementia, care partners and health care practitioners on how to make the diagnostic process and postdiagnostic care as positive an experience as possible, and a playbook to assist other countries with implementing their own change campaigns.
Call Multinational research projects on Health and Social Care for Neurodegenerative Diseases

Project partner

Number Name Role Country
1 University of New South Wales Coordinator Australia
2 University of Sydney Partner Australia
3 McGill University Partner Canada
4 MUMC Partner Netherlands
5 Wroclaw Medical University Partner Poland
6 University College London Partner United Kingdom
7 Newcastle University Partner United Kingdom