3rd EJP RD Joint Transnational Call for Rare Diseases Research Project (JTC 2021)

Basic Information

The European Joint Programme on Rare Diseases (EJP RD) has successfully implemented two Joint Transnational Calls since 2019 to further help in coordinating the research efforts of European, Associated and non-European countries in the field of rare diseases and implement the objectives of the International Rare Disease Research Consortium (IRDiRC). These actions are following the ten Joint Transnational Calls for rare diseases research projects launched previously by the ERA-Net E-Rare since 2006. A number of national and regional funding organisations will participate in the EJP RD Joint Transnational Call (JTC) 2021 and will fund multilateral research projects on rare diseases under the EJP-COFUND action.

Network EJP RD
Website https://www.ejprarediseases.org/announcement-jtc2021/
Aim of the joint call The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients. Topic: Social sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease
Type of joint call Two Stages - Call with pre-proposals and full proposals submissions
Events
Launch date 16/12/2020
Deadline Pre-Proposal 16/02/2021 Submitted proposal: 38
Deadline Full-Proposal 15/06/2021 Submitted proposal: 22
Evaluation End Date 01/12/2021 Successful proposal: 13 Proposals funded: 12
Is call co-funded? Yes
Call follow up funding n/a
Call reasons n/a
Research fields
  • Health
  • Socio-economics sciences and humanities
Type of research n/a
Target groups
  • Higher Education Institutions (HEIs)
  • Public Research Organisations (PROs)
  • SME (Small and Medium Enterprises)
  • Large Corporations
  • Other: patient advocacy organizations
Participating networks n/a

Organisations Participating

Country Organisation
Austria Austrian Science Fund (FWF)
Belgium National Fund for Scientific Research (FNRS)
Belgium Research Foundation Flanders (FWO)
Canada Canadian Institutes of Health Research (CIHR)
Estonia ESTONIAN SOCIAL MINISTRY (SM-EE)
France National Institute of Health and Medical Research (INSERM)
France National Research Agency (ANR)
Germany Federal Ministry of Education and Research (BMBF)
Hungary National Research, Development and Innovation Office (NKFIH)
Israel Ministry of Health (CSO-MOH)
Italy Ministry of Health (MOH/MDS)
Italy Tuscany Region (TOS)
Lithuania Research Council of Lithuania (LSC/LMT/RCL)
Luxembourg National Fund for Research (FNR)
Poland National Centre for Research and Development (NCBiR)
Slovakia Slovak Academy of Science (SAS/SAV)
Spain Institute of Health Carlos III (ISCIII)
Switzerland Swiss National Science Foundation (SNSF/SNF)
Türkiye The Scientific and Technological Research Council of Turkey (TUBITAK)

Funded Projects

Acronym Title Start End No. partners
BUILD CARE Building Support for Children and Families Affected by Stroke 12
BUR-EB Changes in the Socio-economic Burden of Epidermolysis Bullos... 13
COCOS-IPF Co-designing a Core Outcome Set for and with patients with I... 10
GrowDMD Growing into adulthood with Duchenne Muscular Dystrophy – co... 8
LIVES Quality of life of patients living with vascular LIVEr disea... 17
NEUROREHAB Impact of a neuro-cardiac rehabilitation program on the qual... 5
PAVE Producing an Arthritis Value-Framework with Economic Evidenc... 9
PROFA Patient-reported, health economic and psychosocial outcomes ... 14
Q.RARE.LI Improving health-related quality of life in patients with ra... 10
SAPIENCE Social and psychological long-term impact of NMDA receptor e... 10
SeeMyLife Holistic mixed approaches to capture the real life of childr... 26
eCARE-22q11 Evaluating Parent Perceptions, Economic Burden and the Impac... 18