Project: Dementia Outcome Measures: charting new territory

This proposal is underpinned by the understanding that there is a need for further work on outcome measurement for psychosocial dementia research that embraces new ideologies and practice in dementia care. The work will be steered by the following objectives; • Produce updated evidence based recommendations on the best outcome measures for psychosocial research across Europe • Investigate the need for new outcome measures to reflect changes in emphasis and therefore the consequent needs of researchers and of services • Involve early career researchers in the working group to increase capacity in dementia research. The first objective will be achieved through a comprehensive update of A European consensus on outcome measures for psychosocial research in dementia care (Moniz-Cook et al, 2008 This paper was published in Aging and Mental Health by a members of Interdem (a pan-European network of researchers on early detection and psycho-social interventions in dementia; It is the most viewed publication by Aging and Mental Health (2,900 views) and is heavily cited. Since 2008 new intervention studies have emerged to advance the knowledge on the effects of support programmes. Changing views of dementia within society, the increasing voice of the user of health and social care services and associated drive for person- centred care also point towards a need to re-review outcomes. The update will incorporate a reconsideration of the conceptual domains for psychosocial intervention research and associated outcomes. There will be refreshed recommendations in light of the recent evidence. Achieving the second objective will involve scoping the need for new outcome measures for psychosocial research and also for routine application in practice. Those living with the condition (people with dementia and their supporters), researchers engaged in psychosocial research and dementia practitioners will be consulted about what they consider should be measured. The information will be synthesised with the evidence to identify a comprehensive European research agenda. This will include needs for research into the development and testing of outcome measures for practice and research. The third objective will be taken forward through the involvement of early stage career researchers in the activities described above.

Acronym JPNDWG00485 (Reference Number: JPNDWG00485)
Duration 01/01/2014 - 01/01/2015
Project Topic Neurodegenerative disease
Website visit project website
Network JPND
Call A Call for Proposals for Working Groups to Inform Cohort Studies in Neurodegenerative Disease Research

Project partner

Number Name Role Country
1 University of Sheffield Coordinator United Kingdom